First Month on Navalbine --- 03-26-2011

On February 28th, Robin received her first infusion of the Chemo Navalbine®, also called Vinorelbine (generic name). It advertises all the nasty side effects of the other Chemotherapies (hair loss, nausea, reduced blood counts, weakness, etc., etc., etc.), but the doctor said that Navalbine is generally "well-tolerated." So far, the doctor's words were correct. Robin has not been nauseated, although she has been feeling queasy, on and off, and she has experienced a few rounds of some nasty sulfur belches. The worst effect has been a reduction in her red blood cell count. Each week, the count has gotten lower. Robin believes that, if it drops again this week, she will receive a transfusion instead of chemo next week (Monday). The low red blood cell count, also called "anemia," causes weakness because the blood cannot carry enough oxygen to the cells of the body. There can be more severe effects of anemia, but Robin has not experienced them yet. Hopefully, it won't get that bad. Robin won't find out if Navalbine is working until she gets restaged (retested with PET-scans and CT-scans) in about two more months.

Last week, Robin (and I) had our second appointment with Supportive Care at M.D.Anderson. Once again, everyone was very compassionate, focused, and helpful. At one point, we had to turn in our "homework" from the first appointment. (Yes, homework!) Robin and I both completed "Advance Directives" (also known as, Living Wills). They are trying to lead us through preparing ourselves for various decisions that may be coming. Questions like, what we will do when Robin needs more help than I can provide, by myself. These sessions are stirring strong feelings and emotions, but I think the counseling has been helpful to both of us. They took their time with Robin, listened carefully to what she said, and made suggestions for improving Robin's quality of life. We spent almost four hours there.

Once again, we thank God for all your prayers, concern, and support. Robin's spirits are still high, thanks to your meals, cards, calls, and visits. One of the big lifts Robin received lately came from "doggie visits." She wants a puppy SO BAD, but that is clearly not possible in her condition. A couple of our friends have brought their pooches over, and these "doggie visits" are the next best thing. I don't think the cats are in complete agreement, but they recover pretty quickly.

I wish we could thank each and every person who has shown Robin their love and concern. As the disease progresses and her ability to leave the house lessens, Robin could become more isolated. Your outward signs provide her with a visible connection, and they affirm that she is loved and appreciated. Please keep up the good work.

Please continue to keep Robin in your thoughts and prayers. We hope that you will join us in asking God for mercy and healing for ALL those suffering from various cancers, especially those for whom we have been personally asked to pray. Know that we pray for you, too.

Love and Blessings to you,

                  --- Larry, Robin, & John